We know she's a girl so the knitting and crocheting has taken off like a rocket! We are going to cloth nappy, unless she is premature, (Baby girl has Congenital Cystic Adenomatoid Malformation of the lung) then we will just concentrate on getting her strong, and slowly introduce cloth to the hospital!
Baby girl bump's wool stash so far.......
These have been made in 100% pure wool Dazzle Aran BFL, in sherbet colourway from the natural dye studio. I love how soft this yarn is. The natural dyes really suit the yarn.
Hubby likes to choose a yarn for bump projects, he chose this in pinks and white for a newborn dress. I didn't like it at first, but it is growing on me. I'm going to make a flower in the fushia and a ribbon tie for the waist also in fushia. I haven't decided if the booties will be in this mix or in fushia. I am toying with making a soaker in fushia to match the set. I'll see which mood takes my fancy ;)
I have made some little booties and a beret, in between customs 
Hello. I was wondering if you knew which type of CCAm your baby has? I live in Los Angeles, California USA and have a son (now 10 years) that was born with bilateral CCAM.
ReplyDeleteThere is a medical hospital in San Francisco, California you might be interested in contacting. I have included their website and information about their fetal CCAM programs and a clinical trial they have begun in regards to pre-natal steroid.
Kris Doyle
klapdoyle@google.com
http://fetus.ucsfmedicalcenter.org/ccam/
Congenital Cystic Adenomatoid Malformation
Prenatal Steroid Clinical Trial
A new treatment for fetuses with microcystic CCAMs that have hydrops has emerged here at UCSF. We are embarking on a trial to determine whether steroids might be effective in preventing fetuses from developing hydrops fetalis. To find out more and see if you are eligible for this trial visit:
Investigation of Prenatal Steroids for Treatment of Prenatally Diagnosed CCAMs
Our long experience with prenatal diagnosis and planning for optimum care allows us to offer the highest quality treatment whether intervention is indicated before or after birth.
Under the direction of Dr. Michael Harrison, the Fetal Treatment Center was the first institution to develop fetal surgery techniques. The first open fetal surgery in the world was performed at UCSF over 2 decades ago. We presently have more experience with fetal surgery and endoscopic fetal intervention (FETENDO fetal surgery) than any other institution in the world. We are dedicated to congenital cystic adenomatoid malformation research and treatment innovation.
Thankyou for passing on the information. We have so far been told she has two types of CCam the one with the large cysts and the one with the microscopic cysts. I will certainly look up the information you posted and pass it on to our specialist, Thankyou :0)
ReplyDeleteMich x.
beautiful woollies, I love the longies and the booties :-)
ReplyDelete